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Annual Members' Event

Annual Members' Event

DEBRA's Annual Members' Weekend and AGM is a great opportunity to meet other individuals and families living with EB, talk to experts in healthcare and EB community support, see and sample new healthcare products and hear an update on EB research. 

The 2017 Members' Weekend took place on Saturday 13 May - Sunday 14 May at Drayton Manor Theme Park and Zoo. We'll be adding photos and resources from the weekend to this page as they become available - please keep checking back for more information.

You can watch a short video of Members’ Day 2014 below.


What members said about the 2017 weekend

'DEBRA helps my eight year old son understand he is not alone.'

'You organised such a great event and we are really grateful for all you have done for us. Thank you very much!'

'DEBRA has helped us as family by bringing us in to contact with others who are dealing with the same issues.'

'DEBRA are just a FABULOUS charity organisation and are very supportive to us... we love DEBRA.'

'What would we do without DEBRA? Thank you SO MUCH for everything.

'DEBRA is not only a charity like other charities, it is an organisation with an enormous heart as it is always thinking of the needs of its members. Thank you for existing and for making our life a little bit easier and happier!'

'Your team is amazing and your support means a lot for us. You are a 5 star organisation.'

'As a grandparent attending in support I found the overall event invaluable - lots of information, support for children, excellent speakers and a very enjoyable evening do. Brilliant organisation carried by a consistently excellent team. Thank you!'

Attend our members weekend in 2018


Lackshhya's story

Lackshhya's story

"My advice to anyone with EB is to get in touch with DEBRA because it’s good to meet other families who are coping with EB to talk and share thoughts and ideas.” Lackshhya’s Mum


Become a member

Become a member

Membership is free and includes:

  • Access to DEBRA literature
  • FREE seasonal newsletter
  • Invitations to Members’ Day
  • Use of DEBRA holiday homes

Join now