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Annual Members' Event

Annual Members' Event

DEBRA's Annual Members' Weekend and AGM recently took place on Saturday 18 May - Sunday 19 May at Drayton Manor Theme Park and Zoo.

The weekend is a great opportunity to meet other individuals and families living with EB, talk to experts in healthcare and EB community support, see and sample new healthcare products and hear an update on EB research. 


Date for 2020 coming soon!

See your photos!


Presentations - more coming soon!

Welcome - Ben Merrett

Welcome from our President - Simon Weston

What does DEBRA's Members' Weekend mean to you? - Dr Sarah Mundy 

The Glove Project Update (Generation and Evaluation of Hand Therapy Devices for EB) - Rachel Box 

Youth Holiday Camps - Allan Jolly

Research Today, Dystrophic Epidermolysis Bullosa - Tita Ritsema

Amryt Pharma, EASE Clinical Trial Update - Miriam Barry 

Research Today, EB Therapy research in Dundee - coming soon 

Presentations coming:

  • Research
  • Healthcare 

"My 9 year old didn't realise there was anyone else who had the same condition as him...he really got a sense of togetherness and felt supported at DEBRA's Member's Weekend"

Watch Sarah's Story 

Be part of our EB Community

Be part of our EB Community

Membership is free and includes:

  • Advice, support & signposting

  • Use of DEBRA holiday homes

  • Newsletters & information

  • And more

Join now