‘The Great Divide’ DEBRA UK sports dinner in Glasgow raises an incredible £86,000 for those living with EB

A huge thank you to everyone who joined us at the ‘The Great Divide’ DEBRA UK sports dinner in Glasgow on Thursday 21st March 2024. Read more

HRH The Duchess of Edinburgh GCVO hosts meeting with representatives from DEBRA UK and NHS England

On Tuesday 19th March, our Royal Patron, HRH The Duchess of Edinburgh GCVO hosted a meeting bringing together representatives from DEBRA UK and NHS England. Read more

DEBRA UK appoints three new official ambassadors

We are delighted to announce that three leading health professionals have agreed to join DEBRA UK as official ambassadors for the charity. Read more

DEBRA awarded Merit in the British Council Safety Awards

We're delighted to have achieved a MERIT in the British Council Safety Awards! Read more

DEBRA UK enters charity partnership with global employment law and HR consultancy, Peninsula Group

DEBRA UK is delighted to have been chosen as a new charity partner for Manchester-based global employment law and HR consultancy, Peninsula Group. Read more

Rare Disease Day radio interviews

On Rare Disease Day, DEBRA Vice-President, Graeme Souness, and DEBRA member, Lucy Beall, who lives with recessive dystrophic EB, were interviewed on various radio stations to drive awareness of EB. Read more

Team DEBRA raise awareness to mark Rare Disease Day 2024

Take a look at what the DEBRA UK team got up to to mark Rare Disease Day 2024 (29th February). Read more

DEBRA UK event with Jason Robinson OBE raises over £35,000!

We are delighted to announce that our dinner with rugby legend Jason Robinson OBE raised an impressive over £35,000 for our BE the difference for EB appeal. Read more

Inspiring February fundraisers lift weights and cross bridges for EB awareness

Two fantastic fundraisers have taken place in February to help those living with EB and to kick start our 2024 appeal, ‘BE the difference for EB’. Read more

DEBRA UK launches 2024 events calendar!

We're thrilled to unveil our highly anticipated 2024 events calendar, encouraging supporters to actively get involved and make a meaningful impact on the lives of those affected by EB. Read more

Will you BE the difference?

Today (February 5) we launch our major new fundraising appeal for 2024, BE the difference for EB. Read more

DEBRA UK's January 2024 Impact newsletter

Discover the impact of supporters' generosity in our twice-yearly supporter newsletter. Read more

Emma Dodds becomes an ambassador for DEBRA UK

We are delighted to announce that Emma Dodds has agreed to become an ambassador for DEBRA UK. Read more

World renowned Chef, Michel Roux Jnr becomes a DEBRA UK ambassador

Michel has been a supporter of the charity for many years, which has included him hosting our annual Great Chefs Dinner. Read more

DEBRA meet with previous Parliamentary Under Secretary at the Department of Health, Lord O’Shaugnessy

The meeting was an opportunity to share with Lord O’Shaugnessy the progress we have made to date with our drug repurposing programme and some of the challenges we are facing. Read more

DEBRA Quarterly Update 2023 Q4

An update from our board of trustees, including key activities undertaken in the fourth quarter of 2023, and the progress we are making to #StopThePain of EB. Read more

DEBRA attends All Party Parliamentary Group on rare conditions at Westminster

As another indicator of the progress made this year in relation to raising awareness of EB and of DEBRA, we were really encouraged to be invited to a recent All Party Parliamentary Group on rare genetic and undiagnosed conditions. Read more

What a difference a ball of yarn can make

Throughout November, we held our first virtual knitting challenge, and non-physical virtual challenge of its kind. The DEBRA November knitting challenge asked participants to knit every day, to help raise funds to #StopThePain of EB. Read more

DEBRA meet with the new Minister of State for Health and Secondary Care, Andrew Stephenson CBE

We are very grateful to have been able to meet earlier today with Andrew Stephenson CBE, MP for Pendle and the new Minister of State for Heath and Secondary Care. Read more

DEBRA UK wraps up a phenomenal golf season and sets sights on a promising 2024

As the curtains draw on yet another successful DEBRA golf season, we celebrate the incredible support and enthusiasm of 900 golfers across 14 remarkable golf days in 2023. Read more

DEBRA raises £5 million to help stop the pain of EB

We're delighted to share with you the news that since we launched DEBRA’s A Life Free of Pain appeal, we have raised over £5m to help stop the pain of EB. Read more

DEBRA partners with Our Future Health

DEBRA is pleased to be partnering with Our Future Health, a new collaboration between the public, charities like DEBRA, and private sector organisations to build the UK’s largest health research programme. Read more