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  1. Home
  2. Current projects

Current projects

DEBRA UK is the largest UK funder of EB research, awarding grants to researchers with expertise in the scientific and medical fields most relevant to families living with EB.

Our current portfolio of research projects includes pre-clinical laboratory work, research into gene and cell therapies and drug re--purposing, as well as projects driving a change in symptom relief for wound healing and cancer therapy. 

The research we fund is world class, and that’s because we don’t just fund UK scientists and clinicians but the best in the world. Many of the projects we fund combine knowledge and skill from researchers at multiple research sites in the UK and internationally.

It is a time of real opportunity for EB research. Breakthrough in research comes from supporting outstanding projects that encourage the best of talented clinicians and scientists. We need to accelerate the pace and breadth of our research. This means increasing our funding and driving a programme of world-class, innovative and collaborative research that will bring hope and improved outcomes for everyone living with EB. Together we can achieve this ambitious and essential journey to change lives and end suffering.

Tony Byrne, DEBRA CEO

Understanding airway disease in JEB

Understanding airway disease in JEB

Dr Colin Butler, GOSH, UK Read more

Published: 1st November, 2021

Updated: 16th June, 2022

Author: Kat Heppinstall

Scarring in RDEB

Scarring in RDEB

Prof Giovanna Zambruno, Rome, Italy Read more

Published: 1st November, 2021

Updated: 7th June, 2022

Author: Kat Heppinstall

Kindler syndrome and skin cancer

Kindler syndrome and skin cancer

Prof Valerie Brunton, Edinburgh, UK Read more

Published: 1st November, 2021

Updated: 7th June, 2022

Author: Kat Heppinstall

Decorin gel to reduce scarring

Decorin gel to reduce scarring

Phoenicis Therapeutics Read more

Published: 1st November, 2021

Updated: 15th June, 2022

Author: Kat Heppinstall

Immune system involvement in RDEB

Immune system involvement in RDEB

Dr Yanling Liao, NYMC, USA Read more

Published: 1st November, 2021

Updated: 8th June, 2022

Author: Kat Heppinstall

Wound healing in EB

Wound healing in EB

Professor Adrian Heagerty, Birmingham, UK Read more

Published: 1st November, 2021

Updated: 13th June, 2022

Author: Kat Heppinstall

Mouth/throat spray treatment

Mouth/throat spray treatment

Prof Liam Grover, Birmingham UK Read more

Published: 1st November, 2021

Updated: 8th June, 2022

Author: Kat Heppinstall

Walking with EBS

Walking with EBS

Prof Deborah Falla, Solihull UK Read more

Published: 1st November, 2021

Updated: 15th June, 2022

Author: Kat Heppinstall

Spray on RDEB gene therapy

Spray on RDEB gene therapy

Dr Su Lwin, London, UK Read more

Published: 1st November, 2021

Updated: 8th June, 2022

Author: Kat Heppinstall

RDEB skin cancer

RDEB skin cancer

Prof Gareth Inman, Glasgow, UK Read more

Published: 1st November, 2021

Updated: 8th June, 2022

Author: Kat Heppinstall

Repurposing anti-scarring drugs

Repurposing anti-scarring drugs

Dr Daniele Castiglia, Rome, Italy Read more

Published: 1st November, 2021

Updated: 8th June, 2022

Author: Kat Heppinstall

Cannabinoid treatment for pain and itch

Cannabinoid treatment for pain and itch

Prof Wolff, Groningen, Netherlands Read more

Published: 1st November, 2021

Updated: 15th June, 2022

Author: Kat Heppinstall

Skin microbiome and immunity

Skin microbiome and immunity

Prof Iain Chapple, Birmingham, UK Read more

Published: 1st November, 2021

Updated: 8th June, 2022

Author: Kat Heppinstall

PEBLES symptom study

PEBLES symptom study

Prof Jemima Mellerio, London, UK Read more

Published: 1st November, 2021

Updated: 16th June, 2022

Author: Kat Heppinstall

Nanoneedle wound study in RDEB

Nanoneedle wound study in RDEB

Prof John McGrath, London, UK Read more

Published: 7th June, 2022

Updated: 8th June, 2022

Author: Tilda Kusmishko

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Showing 10 of 15

Latest

  • Filsuvez® gel approved for use in the EU

    Filsuvez® gel approved for use in the EU

    The UK is a step closer to having the first approved treatment for EB patients.

  • Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    Mark Algar and Paul Buckworth complete 113km Ultramarathon to help #FightEB!

    On the 18th June 2022, Mark Algar & Paul Buckworth took on an 113km Ultramarathon to help #FightEB.

  • Leave a legacy

    Leave a legacy

    Leaving a gift in your will is a simple but vital way to help make sure DEBRA is there to provide care and support to people living with EB and fund life changing research.

  • DEBRA Memory Makers campaign raises £55,119!

    DEBRA Memory Makers campaign raises £55,119!

    Our #DEBRAMemoryMakers campaign has raised an incredible £55,119.30 towards our DEBRA holiday homes!

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

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