We cannot stop the pain of EB on our own and so we’re extremely grateful to be able to count on the support of our royal patron, our president, vice presidents, and ambassadors who help us raise awareness of EB, and of DEBRA, and the work we do. We are also very grateful to be able to count on the support of our independent advisor, who supports our research programme, and our Board of Trustees, who voluntarily give their time to oversee the management and administration of the charity ensuring that it remains fully focused on the needs of its members and the wider EB community.
Find out more about #TeamDEBRA below.
HRH The Duchess of Edinburgh - "I feel that my life has been enriched by the experiences I have had since becoming Patron of DEBRA..." Read more
In the honorary role of DEBRA's President, Simon Weston CBE, will raise awareness of EB and DEBRA as well as supporting fundraising to provide care and support for the EB Community and fund research into effective treatments and a cure. Read more
Our vice presidents, Graeme Souness CBE, Frank Warren, Stuart Procter and Lenore England. Read more
DEBRA ambassadors come from a range of backgrounds, including people living with or directly impacted by EB, and people with a public profile and platform which they are willing to use in support of the charity. Read more
We're lucky to have the support of a number of independent advisors with a wealth of experience, to help us in our mission to stop the pain for people living with EB. Read more
Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA. Read more
Our senior leadership team works towards our mission of improving the quality of life for people living with EB and our search for a cure. Read more