HRH The Duchess of Edinburgh - "I feel that my life has been enriched by the experiences I have had since becoming Patron of DEBRA..." Read more
In the honorary role of DEBRA's President, Simon Weston CBE, will raise awareness of EB and DEBRA as well as supporting fundraising to provide care and support for the EB Community and fund research into effective treatments and a cure. Read more
Our Vice Presidents, Graeme Souness, Frank Warren, Stuart Procter and Lenore England. Read more
We are incredibly grateful to these famous faces for supporting us through our events, campaigns and DEBRA shops. Read more
Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA. Read more
Our Senior Leadership Team works towards our mission of improving the quality of life for people living with EB and our search for a cure. Read more
We're lucky to have the support of a number of independent advisors with a wealth of experience, to help us in our mission to stop the pain for people living with EB. Read more