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  1. Who we are
  2. Our people

Our people

Our patron

Our patron

HRH The Countess of Wessex - "I feel that my life has been enriched by the experiences I have had since becoming Patron of DEBRA..." Read more

Published: 29th October, 2021

Updated: 4th January, 2022

Author: Tom Marshall

Our president

Our president

In the honorary role of DEBRA's President, Simon Weston CBE, will raise awareness of EB and DEBRA as well as supporting fundraising to provide care and support for the EB Community and fund research into effective treatments and a cure. Read more

Published: 30th October, 2021

Updated: 5th January, 2022

Author: Kat Heppinstall

Our vice presidents

Our vice presidents

"I am in a position to bring this charity to the attention of a number of people who will be able to make a real difference to the EB community." Read more

Published: 31st October, 2021

Updated: 23rd March, 2022

Author: Kat Heppinstall

Our celebrity supporters

Our celebrity supporters

We are incredibly grateful to these famous faces for supporting us through our events, campaigns and DEBRA shops. Read more

Published: 3rd November, 2021

Updated: 5th January, 2022

Author: Kat Heppinstall

Our trustee board

Our trustee board

Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA. Read more

Published: 13th November, 2021

Updated: 13th May, 2022

Author:

Our senior team

Our senior team

Our senior team works towards our mission of improving the quality of life for people living with EB and our search for a cure. Read more

Published: 14th November, 2021

Updated: 28th March, 2022

Author:

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  • Current projects

    Current projects

    Find information about the EB research projects we currently fund.

  • Swim Serpentine 2022

    Swim Serpentine 2022

    Take the opportunity to participate in an open water swimming festival at the famous Serpentine Lake in London's Hyde Park. Challenge yourself to a one mile, two mile or six mile swim.

  • Bath Half Marathon 2023

    Bath Half Marathon 2023

    Join #TeamDEBRA and take on this challenge through the beautiful city of Bath. We will support you every step of the way.

Most read

  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

    Epidermolysis Bullosa (EB) is a painful genetic skin blistering condition with no cure. Find out about different types of EB, causes, symptoms and treatments.

  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

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DEBRA is registered as a Charity in England and Wales (1084958) and Scotland (SC039654).

Company limited by guarantee registered in England and Wales (4118259).  © 2022
Registered office: DEBRA, The Capitol Building, Oldbury, Bracknell, Berkshire, RG12 8FZ

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