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  1. Get involved
  2. Fundraise for us
  3. Friends of DEBRA

Friends of DEBRA

Friends of DEBRA groups are regional, family led groups who fundraise for DEBRA and raise awareness in their local communities. Each group looks after their own particular region and fundraise inspired by someone living with EB. The groups are vital to our work and provide an excellent base to spread EB awareness across the country. Meet our Friends of DEBRA groups below and see how they have been inspired to start their local group. 

Every group is unique and has its own strengths: some will focus on regular but smaller scale events; some will hold larger but less frequent events; and others will base their fundraising on contacting local groups, schools, businesses and utilising their contact network.

We jumped at the opportunity to formalise our fundraising for DEBRA and set up a Friends Group. We've been supporting the charity for a number of years but were really pleased to have more autonomy and be the charity representatives in our area. We're particularly delighted that we have a say on what our fundraising goes towards.

Friends Group Member

Benefits of setting up a Friends of DEBRA group

  • Be the DEBRA representative for your area
  • A dedicated DEBRA contact will help get the group started
  • Bespoke logo for your group (and letterhead displaying this)
  • Ability to restrict where your fundraising goes (e.g. type of EB research)
  • Yearly updates into funded research projects and the group’s fundraising
  • Own page on the DEBRA website (administered by DEBRA) with donate form specific to your group
  • A range of fundraising resources to maximise your efforts
  • Dedicated online giving page campaign so fundraisers can gain online sponsorship direct to your group
  • DEBRA will handle all the admin for the group

Interested in starting a Friends of DEBRA group in your area? Take a look at the benefits and dedicated FAQs; once you are ready contact the team or register to start your group.

North East London

North East London

Find out about the North East London Friends of DEBRA and how Ray has inspired their fundraising. Read more

Published: 3rd December, 2020

Updated: 14th February, 2022

Author: Ailsa Winter

Teeside

Teeside

Find out about the Teeside Friends of DEBRA and how Ollie has inspired their fundraising. Read more

Published: 3rd December, 2020

Updated: 14th February, 2022

Author: Ailsa Winter

South Staffordshire

South Staffordshire

Find out about the South Staffordshire Friends of DEBRA and how Jamie has inspired their fundraising. Read more

Published: 3rd December, 2020

Updated: 14th February, 2022

Author: Ailsa Winter

South East Kent

South East Kent

Find out about the South East Kent Friends of DEBRA and how Darcy has inspired their fundraising. Read more

Published: 3rd December, 2020

Updated: 14th February, 2022

Author: Ailsa Winter

Downloadable resources

Downloadable resources

Our Friends of DEBRA downloadable resources (including templates) to use when fundraising for DEBRA. Read more

Published: 8th November, 2021

Updated: 25th January, 2022

Author: Kat Heppinstall

Friends of DEBRA FAQs

Friends of DEBRA FAQs

You will find some questions that will answer any queries that you have, but if not please do get in touch with the fundraising team. Read more

Published: 8th November, 2021

Updated: 25th January, 2022

Author: Kat Heppinstall

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Showing 10 of 6

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  • Furniture collection

    Furniture collection

    Donate your unwanted furniture, homewares and electrical items using our free furniture collection service. With safety measures in place, donating your items couldn’t be easier.

  • Find a store

    Find a store

    Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

  • Items we do not sell

    Find out what health and safety standards and labels we require and which items we cannot sell.

  • Contact Us

  • What is EB?

    What is EB?

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  • Donate items

    Donate items

    Donate your quality pre-loved items, including clothes, furniture and homeware to keep them from landfill and help us to raise vital funds through our stores. Find out more about how to donate items today.

  • Work with us

    Work with us

    DEBRA can only continue its vital work with the support and encouragement of the local community and with the hard work of its employees and volunteers.

  • Who we are

    Who we are

    DEBRA is the national charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB)

  • Dystrophic EB (DEB)

    Dystrophic EB (DEB)

    Can be mild or severe (dominant or recessive). The defective gene and fragility occurs below the basement membrane within the superficial dermis.

  • Our history

    Our history

    DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had Dystrophic EB – the charity was the world’s first EB patient support group.

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