Our Community Support Team are available for non-medical support and to help signpost you to appropriate services from Monday-Friday 9am–5pm. Please note we are not a 24-hour service. Learn more about how we can help.
People living with EB have fragile skin. It may blister and tear very easily, including the mouth and throat. Ask the patient or my family for advice. They are the experts.
Clinical practice guidelines (CPGs) are a set of recommendations for clinical care, based on evidence gained from medical science and expert opinion. CPGs help professionals understand how to treat someone with EB.
Emergency contact information and downloadable 'I have EB' cards to carry with you to inform healthcare professionals that you may require specialist care. Find out more on emergency information for EB patients.