Our Members’ Weekend 2022 will take place on the 14th and 15th May at Wokefield Estate, Reading, Berkshire.

Applications to attend the event are now closed. The event feedback survey will launch on 14th May. 


Members Weekend 2022 Event Programme

You can now view our Members Weekend 2022 Programme here!

This contains all the information you need to know for the weekend, including our events timetable, health and safety information and general information about our venue.

We hope that there is something for everyone and that you will find the day not only useful but fun too.

Our Membership Team and Community Support Team will be around all day to help facilitate your enjoyment of the day and will be pleased to help where they can.

If you have any queries, please contact [email protected].


The information on this page includes:


What to expect

DEBRA Members' Weekend

Our Greatest Show Circus theme acknowledges some of the demands that many Members juggle in life when living with EB.

Members have told us how useful and enjoyable it is to attend Members’ Weekend.

The event enables Members to connect with other Members living with EB, helps people who may feel isolated and gives an opportunity to share and learn from one another, as well as meet community support, healthcare and research leads and have fun.

DEBRA Members' Weekend

  • Something for everyone – whatever your age or the type of EB that you live with
  • Attend for one day or the whole weekend
  • Saturday - presentations, practical workshops, information stands, fun activities and plenty of food!
  • Saturday evening - drinks reception, dinner, disco, overnight accommodation and breakfast
  • On Sunday you will be free to enjoy the many lovely places nearby, for example, Wellington Country Park, Windsor or Henley-on-Thames.

If you would like to be involved with the theme of the weekend (e.g. providing entertainment, sharing a story or suggesting topics for the workshops), please get in touch.

Let’s work together and tackle how we juggle life's demands.


Things to do locally

Highclere Castle

On the Sunday of members’ Weekend you will be able to enjoy the hotel grounds and facilities*. For golf enquiries please contact the golf academy.

For contact details for the onsite golf academy and places to visit locally such as Wellington Easte (3 miles) and Luckey Farm (7 miles), visit the days out guide.

*additional costs may apply


Merlins’ Magic Wand is a charity that makes FUN accessible to children with three Magic Spells: "Magical Days Out" is just one of these spells.

The Charity provide complimentary tickets and fund a contribution towards a travel grant for families to enjoy their day at a Merlin Entertainments’ attractions, such as LEGOLAND Resort® theme parks, and Thorpe Park, which are within 25 miles of the hotel. If you think you would like to apply for tickets we encourage you to do so as soon as possible or there may not be long enough for the application to be processed and considered. Full details of the scheme, including eligibility, terms and conditions can be found here:



Alternatively, have a look at applying for something for another time, they offer tickets across the ticket to a variety of attractions.


Making your way to the venue

 You can use the following link to find out how to reach the venue.


Wokefield Estate Map

 Wokefield Estate Map


Who can attend?

You must be a DEBRA Member to attend the event. Learn more about how to become a member for free. 

Please note: All Members are welcome to attend the daytime Members’ Day event on Saturday (subject to venue capacity). However, a maximum number applies for the optional Saturday evening activity, which includes dinner and overnight accommodation. For families wishing to apply for the evening event a family member is defined as a parent, guardian or sibling under the age of 18.


How to book 

Please complete the application pack below. The presentations and activities on Saturday are free.

A £37.50 contribution (no charge for children under 18) is required to secure your booking for the evening meal and overnight accommodation (subject to eligibility criteria). Please find the terms and conditions of booking here.

Complete the application pack


Extended Friday Night Grant Scheme

The extended Friday night grant scheme is available, on a limited basis, to allow Members who wish to attend the Members’ Weekend from the start time on Saturday morning but have a long distance to travel and who may require additional time for dressing changes.

Read our leaflet for more information and click here to view the grants terms and conditions.

If you have any questions, need documents posting or help with completing any of the forms, please contact the Membership Team on 01344 771961 (option 1) or email [email protected].

Apply for the Extended Friday Night Grant Scheme



All forms should be returned to us by email or post no later than Monday, 17th January 2022.

Complete the application pack

Apply for the Extended Friday Night Grant Scheme


DEBRA Members' Weekend

Get in touch

If you have not attended a Members' Weekend before and would like to know more, just give us a call and we can give you the details:

t: 01344 771961 (option 1)

e: [email protected]

Learn more about how we can help or click here to meet the Community Support Team. 


Our Sponsors

Thank you to our sponsors for supporting the DEBRA Members Weekend 2022. The generosity of our sponsors and corporate partners is vital for us to provide events like this for our members.

You can find more information on how your company can support DEBRA visiting our corporate partnerships page.


Urgo logo


Bullen Healthcare logo


Flen Health logo


Molnlycke logo

Booking for this event has now closed.