Memories are the most precious thing we have… something that feels even more significant since losing our son Oliver in December 2021.

When Oliver was diagnosed with Dystrophic Epidermolysis Bullosa (DEB) as a new-born baby, one of the most severe forms of EB. It causes blistering internally and externally, leading to limited mobility and loss of eyesight. Sarah and I feel so blessed to have had Oliver in our lives for over three decades, far longer than we were told to hope for.

In June 2021, we shared our last treasured holiday as a family, at the DEBRA holiday home in Norfolk. As Oliver became too ill to travel abroad, DEBRA holiday homes gave us precious opportunities to explore and travel as a family. We all loved these holidays, not only were they convenient and accessible, but they became a fantastic place of sanctuary for us. The little things made such a big difference, like doors wide enough for Oliver’s electric wheelchair and plenty of storage for bandages and medical supplies.

Our family visited DEBRA holiday homes over ten times in locations across the UK, including Weymouth, Poole, and North Wales. These homes truly gave us the space to relax, have special family time and, most importantly, make memories together.

Oliver sadly passed away from an aggressive form of skin cancer, that many with DEB are afflicted by.

From Oliver’s smiling face as we went on steam trains in Norfolk, to seeing him on top of the world at Snowdon, to the laughter we had playing games at the home – it all means more now, than ever before. With the loss of Oliver, every holiday now has a missing piece, an empty chair at the dining table.

We cherish every memory we made on that last holiday.

Please help other EB families like ours to make memories that will last a lifetime by donating today, every donation up to a total of £25,000 will be match funded. This means that your donation will make an even bigger difference and help create even more precious memories.

 Mick and Sarah