DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.

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Become a member

If you or a family member live with EB, are a carer or someone who works with people affected by EB, then you can become a DEBRA member. Find out how.

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Author: Wendy Garstin

Our research into treatments & cure(s)

DEBRA funds research to find effective treatments that will lessen the day-to-day impact of EB, and, ultimately, to find cures to eradicate EB.

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Find a store

Find your nearest DEBRA charity shop and help fight EB. Our stores sell affordable and quality pre-loved clothing, furniture, electrical items, books, homeware and more.

Published:

Author: Amy Counihan

Make a donation

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Our Impact

46

years of commitment to EB

£22m

invested in EB research

149

research projects

Latest events

  • Butterfly Lunch

    The DEBRA UK Butterfly Lunch at Cameron House in Loch Lomond is back! Join us in the ballroom on the Bonnie Banks and help 'BE the difference for EB'. Read more

  • Goodwood running GP

    Goodwood Running GP offers the chance to run around one of the most famous motor circuits in the UK. There are distances for all abilities with a running grand prix medal at the end. Read more

  • Great South Run 2024

    Join #TeamDEBRA for The Great South Run - one of the best 10-mile runs in the world! Portsmouth’s supporters will keep your spirits and motivation up the whole way round. Read more

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