EB CHARITY LAUNCHES NEW WEBSITE
ON-LINE information about the devastating skin blistering condition Epidermolysis Bullosa (EB) is now even easier to access thanks to a new-look charity website.
Crowthorne-based charity DebRA, which supports people with the rare genetic skin condition, has updated its website to provide even more information and advice for families affected by EB and more news and event updates for its supporters.
The website – www.debra.org.uk – includes the latest medical information about EB and advice for families dealing with the condition, including a list of publications to download.
There are also write-ups about forthcoming events, recent fundraising activities, up-to-date news items and photographs.
Personal stories from people with EB are an important feature of the site.
For the first time the site will be managed in-house by DebRA staff, instead of outside agencies, to allow for quick updates when new information comes into the DebRA office.
Mark Smith, DebRA’s director of fundraising and communications, said the new-look website would be an invaluable tool for anyone affected by EB, and a useful resource for those wishing to support the charity or find out more about it.
He said: “This website is for anyone affected by EB or interested in finding out more about the condition or DebRA’s work. We wanted the website to be user-friendly, informative and relevant and I believe we have achieved those aims.
“The new website is clear, easy to understand and full of useful information about EB and DebRA.
“From advice on how to handle a newborn baby with EB, to how to raise money for DebRA’s vital work, it is all available on www.debra.org.uk.
“The most important thing is that visitors to the site feel included, and we welcome their feedback. Any comments can be relayed to DebRA using the contact forms.”
ENDS
For more information please contact Rosslyn Snow, PR and Press Officer for DebRA, on 01344 771961 or email rosslyn.snow@debra.org.uk.
