CREATIVE Scot Eley and Angharad Williams, who both live with the genetic skin condition Epidermolysis Bullosa (EB), have each designed a fabulous Christmas e-card for the EB charity DebRA.
Scott, of Earby, Lancashire, is 11 years old and Angharad, of Aberystwyth in Wales, is eight. They both have recessive dystrophic EB which means their skin blisters and tears at the slightest friction.
Now they are hoping that their Christmas cards will be emailed all over the world to help raise vital funds for their charity.
Scott said: “I hope people like my card design. I worked really hard on it and I would be really proud if it helped to raise money for DebRA and spread the word about EB.
“I have recessive dystrophic EB, and it means that my skin is really delicate and it scars when it heals. I have even had to have an operation to widen my throat because the scarring made it very narrow.
“I have to have my dressings changed everyday, which is really painful, and I have extra help at school.
“DebRA has supported me and my family so I hope that my Christmas e-card will help support DebRA.”
EB is a painful genetic condition, the effects of which were highlighted in the Channel Four documentary The Boy Whose Skin Fell Off.
DebRA is encouraging people to save paper and email the specially designed cards to their friends and family.
It is hoped that the money saved on cards and postage could then be donated to DebRA instead.
It is the first time that DebRA has created a Christmas e-card and the electronic cards have already had a great response.
You can access Scott and Angharad’s Christmas e-cards here.
ENDS
