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Discussion Forums

DebRA have two forums for people affected by EB.

One forum is a private forum for adolescents, where young people can discuss issues in a secure environment. This forum is moderated by Specialist Children's Nurse Natalie Hadley, who is based at Birmingham Children's Hospital.

Sign in to the Adolescent ForumSign in to the Adolescent Forum

Our second forum is for anyone affected by EB - whether it be someone with EB, families affected by EB or new parents of a child with EB. This forum is moderated by Rosslyn Snow, the Communications Officer for DebRA. If you're experiencing problems signing in please email rosslyn.snow@debra.org.uk.

Sign in to the Adult ForumSign in to the Adult Forum

Both of these forums are password controlled and anyone joining either forums must be known to DebRA.

If you would like to join a forum, please complete the form below:

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