Members' Area
DebRA is committed to providing the best possible care and support to everyone affected by EB, whether they have EB themselves or they are caring for someone with EB.
**THERE HAS BEEN AN EXCITING BREAKTHROUGH IN EB RESEARCH. PLEASE CLICK HERE TO READ MORE.**
Become a member of DebRA
Individuals and families living with EB are invited to become a Member of DebRA.
Membership is free and means that people can get advice and support from our nursing and social welfare team. Members also receive a regular DebRA Newsletter.
If you would like to join DebRA as a Member, please CLICK HERE to submit an application form.
Alternatively please get in touch with Cynthia Richards, DebRA's Welfare Co-ordinator, by emailing cynthia.richards@debra.org.uk or telephoning 01344 771961.
Join the DebRA Forums
This website also offers two online forums - a general forum for everyone affected by EB and one specifically for adolescents.
You will need to register to JOIN THE FORUM and be known to DebRA.
These are confidential areas; the general forum is modified by Hon Wong, who has EB. Natalie Hadley, a Children's EB Nurse Specialist at Birmingham Children's Hospital, moderates the adolescent forum.
Visit the DebRA Publications Library
If you need more information about any aspect of EB, please visit our PUBLICATIONS LIBRARY.
If you need further assistance...
If you need any further assistance, please contact Cynthia Richards, our Welfare Co-ordinator based at our office, on 01344 771961 or email cynthia.richards@debra.org.uk.
