DEBRA - for people whose skin doesn't work, we do
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WELCOME to DEBRA
DEBRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB).
This site is your first port of call for reliable information on EB whether you or your child has EB, you want to support the charity, or you simply want to find out more.
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Understanding EB
Epidermolysis Bullosa (EB) is a group of genetic disorders that result in fragility of the skin and, in some cases, other internal membranes and organs. Blisters, open wounds and sores form as a result of the slightest touch, rub or trauma.
EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK.
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Get Involved
There are lots of ways you can help DEBRA to improve the lives of those affected by EB.
Visit our fundraising pages and find out how you can help.
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Real Life Stories
Inspirational stories of people living and caring for someone with EB.
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