Discussion Forums

DebRA have two forums for people affected by EB.

Both of these forums are password controlled and anyone joining either forums must be known to DebRA.

One forum is a private forum for adolescents, where young people can discuss issues in a secure environment. This forum is moderated by Specialist Children's Nurse Natalie Hadley, who is based at Birmingham Children's Hospital.

Our second forum is for anyone affected by EB - whether it be someone with EB, families affected by EB or new parents of a child with EB. This forum is moderated by Kim Davies. If you're experiencing problems signing in please email kim.davies@debra.org.uk

WE HAVE NOTICED THAT SINCE OUR WEBSITE HAS CHANGED MANY OF OUR MEMBERS HAVE NOT BEEN ABLE TO LOG ONTO THE FORUM. MAKE SURE YOU RE REGISTER. SORRY FOR ANY INCONVENIENCE

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