DebRA is dedicated to enabling people living with EB to help themselves and each other to maintain the best possible quality of life.
EB is a rare condition and most doctors, nurses and other healthcare workers will not have experience of treating affected individuals. Similarly, in the most severe forms of EB, there is usually no previous family history. In these circumstances, people with EB, their families and their professional carers need access to both accurate information and the help of specialist staff, experienced in EB.
In this section of the website, you will find information on the management of EB and the services available from DebRA and the NHS.
