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Celebrity Supporters

Anthea Turner - DebRA Vice President

Anthea Turner"I have been very moved and humbled by the spirit and lust for life of the people that I have met who have EB. I live a life mainly free of pain and free of disability and would like that to be the case for people with EB.

That's why I support DebRA, to help them to find effective treatments and the cure that we all know will arrive one day if we all give a little. Please support DebRA in any way you can."

Nell McAndrew - DebRA Vice President

Nell and Mia

"I am supporting DebRA to help these children have a happier life and hopefully find a cure for this distressing condition. No one likes to see children in any pain or discomfort and by supporting DebRA you too could make a huge difference to all with EB."

Chris Tarrant - DebRA Vice President and president of the DebRA Fishing Society

Chris Tarrant"When I heard what people with EB go through every day I just knew I had to help. It is humbling to watch someone with EB get on with life, to work, to play, to have a family, to fundraise and to help raise awareness, despite their constant pain. DebRA funds research that will one day lead to effective treatments for this terrible condition and until that time DebRA continues to directly support families affected by EB. That is why I support DebRA."

Peter Alliss - DebRA Vice President and president of the DebRA Golfing Society

Peter Alliss"EB is a most distressing and agonising condition. We must do even more to prevent children waking up to another day of pain."

Graham Norton - DebRA Vice President

" Graham NortonI cannot imagine how living with EB must feel. Someone at DebRA said that it’s the worst condition you’ve never heard of. Hopefully this will change so the work of DebRA will become known and a treatment for EB will be found. Please support DebRA so that it can continue to provide nursing care for people with EB as well as funding for its vital research programme."

Julie Hesmondhalgh - DebRA Vice President

Julie Hesmondhalgh"Without wanting to be glib or clichéd, I know that I wouldn't have the courage to live with EB. I have had blisters on my heels that have incapacitated me, so in my dealings with the so-called butterfly people of DebRA I have had instilled in me not a sense of pity at all, but of absolute admiration and awe. It's this that inspires me to continue working with the DebRA charity, and supporting them in their search for a cure for this unquestionably terrible condition that strikes the skin but never the spirit of its sufferers."

Julia Haworth - DebRA Vice President

Julia Haworth"I support DebRA because EB is a horrific condition for which a cure must be found. This can only be done by constant campaigning to raise both awareness and funds for research. Having met several people with EB and seen their determination, it has inspired me to be determined in my commitment to DebRA."

Bill Nighy

Bill Nighy"Ever since I was alerted to the fact that it can take a mother 3-4 hours to dress her child every morning for fear of hurting them and since further discovering the immense distress caused by this terrible condition, I have been more than grateful to DebRA for giving me the opportunity to help.”

Ian Wright

FOOTBALL idol and TV presenter Ian Wright is a longstanding DebRA supporter who continues to help raise awareness and vital funds for DebRA by attending many of our fundraising events.

Ian Wright with Dean AndersonPictured left with Dean Anderson who has Recessive Dystrophic EB, Ian says: "Over the years, I have met some truly inspirational people who live with this painful skin condition on a daily basis. I feel privileged to support DebRA whenever I can."

Louise and Jamie Redknapp

"DebRA really cares for people with EB. The specialist DebRA nurses will visit a newborn baby with EB and continue their care for that Jamie and Louise with Hon Wongbaby throughout his or her life, either at home or at Great Ormond Street Hospital. DebRA makes a huge difference to the lives of people with EB and invests a lot of money on research that will save lives. We have met some wonderful people with EB and we want to do as much as possible to make people aware of this little known condition. DebRA is a truly committed charity. Please support DebRA and help us make a difference to the lives of people with EB."

The Cheeky Girls

"When I think of the children who go through so much pain with EB, Cheeky Girlswho find it painful to walk, it really motivates me to train harder and help make DebRA's work more well known - my blisters after the marathon will be nothing compared to what the children with EB have to go through every day. I am running for all the children who live with EB and hope that DebRA will find a cure for EB very soon." (Monica)

Tony Caunter

Tony Caunter"These days it’s easy to feel numb to the pain and suffering of others because we see and hear so much of it in the world. EB is one of those things you don’t get over, it’s something you are born with and just have to learn to live with.

DebRA is a caring hand of help to those who have the condition, help that they would not otherwise receive. In addition to all their great clinical and research work, it’s the smile they put on people’s faces and the improvement to quality of life that I think makes the world of difference and leads me to support their excellent work. You can help too, please do whatever you can."

Brough Scott

Brough Scott

"DebRA does that most simple and wonderful of things, it offers hope where formerly there was just despair."