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Leaving a Legacy to DebRA

Making a will is one of those things many people mean to do – but keep putting off! Or they’ve made one but don’t get round to updating it. Surprisingly, making your will can be quite quick and easy – and it puts everything under your control.

Most people are surprised how enjoyable making their will can be – it’s an opportunity to give to family, friends and favourite charities without actually taking out the cheque book. Apart from that, making a will is really important, because if you die without leaving a will the state directs who inherits, not you. So your friends, favourite charities and relatives may receive nothing.

It’s also vital if you have children or dependents who may not be able to care for themselves, you have overseas property, you own a business or are not married to your partner. It’s also essential to review it every five years or so.

More details can be found in a leaflet by The Law Society available from DebRA. Please request a leaflet here.

Why DebRA?

DebRA is the only charity in the UK that provides nursing and welfare care for people with EB and their families. Around five thousand people are affected by EB in the UK and, without government funding, DebRA relies on the support of individuals to fund its services and international research programmes.

Jonny KennedyJonny Kennedy, who was featured in the documentary The Boy Whose Skin Fell Off, had Recessive Dystrophic EB. DebRA has embarked on a five year research programme at Barts and Royal London Hospitals to discover why people with Jonny’s type of EB have a 70% likelihood of getting skin cancer.

Jonny’s EB was severe; he was very disabled and lived in constant pain. However, Jonny worked tirelessly for DebRA, increasing its profile and raising funds in the desire that children born with EB today would not have to experience the pain and distress that he did.

Please help DebRA make Jonny’s dream come true by remembering us in your will. Please click here to complete our legacy form and here for our booklet Leaving a Legacy to DebRA.

"I haAnthea Turnerve supported DebRA for a number of years, after meeting a little boy who lives with severe EB. This really is the most distressing condition I have seen and I believe it is vital that we do everything possible to ensure tomorrow’s children do not have to suffer the agony of EB. Leaving money in your will to DebRA will ensure that the charity can continue to give people with EB the best possible quality of life and fund research which will hopefully find a cure for this horrific condition. Please support DebRA." - Anthea Turner